“I have met thousands of special-needs families, each with their own story and set of challenges; but the Snedekers are truly exceptional. Paige’s love for God and passion for life is made all the more glorious in contrast to her severe disability – and as a quadriplegic mouth-artist myself, I am so impressed with her artistic talent."
— Joni Eareckson Tada, Joni and Friends International Disability Center
As a toddler, Paige was struck by a very rare neuromuscular disease, called Riboflavin Transporter Deficiency (RTD Type 2), or BVVL, which has caused her to lose the ability to use her hands and legs and to breathe on her own, as well as to be Deaf and legally blind. Paige is very excited to finally have a diagnosis for her disease after many years of thinking she would never receive answers as to what was causing her disabilities.
Much of the proceeds from The Paige Project are going to fund another non-profit organization, Cure RTD, whose mission is to contribute to research on finding a cure for the disorder.
Paige is available to share her testimony and conduct meet-and-greets. To contact Paige, click here.
A special thank you from Paige to God, her family, and her friends for all the support they have given. Through prayer, reading her Bible, and the encouragement from everyone, she continues to persevere.
If you would like to know more about Paige and her family: