“I have met thousands of special-needs families, each with their own story and set of challenges; but the Snedekers are truly exceptional. Paige’s love for God and passion for life is made all the more glorious in contrast to her severe disability – and as a quadriplegic mouth-artist myself, I am so impressed with her artistic talent.”
— Joni Eareckson Tada, Joni and Friends International Disability Center
Paige Snedeker was born with a very rare disease, Riboflavin Transporter Deficiency Type 2. In result of the disease, she is deaf, legally blind, has lost the majority of her mobility which leaves her dependent on a wheelchair and a breathing ventilator.
Paige’s older twin brothers, David and Tyson, were also affected by RTD. After 27 years of searching for an answer, Paige and her family were thrilled to finally find a diagnosis.Unfortunately, David passed away when he was 15.
Paige has written two children’s books, Sofia and Her Morningstar, and Camo’s Journey. Currently, Paige is writing her memoir and growing awareness about her organization, The Paige Project. The mission of her organization is to: Inspire People to Overcome Adversity.
If you would like to know more about Paige and her family visit the Joni and Friends website and watch the story Joni Eareckson Tada did for her TV show. The episode is called The Snedeker Family – No Unhappy Endings.
Paige is available to share her story and encouragement at in person events and via video calls as well as conducting meet-and-greets. To contact her, click here.