“I have met thousands of special-needs families, each with their own story and set of challenges; but the Snedekers are truly exceptional. Paige’s love for God and passion for life is made all the more glorious in contrast to her severe disability – and as a quadriplegic mouth-artist myself, I am so impressed with her artistic talent.”
— Joni Eareckson Tada, Joni and Friends International Disability Center
Paige Snedeker is a survivor of a very rare disease, Riboflavin Transporter Deficiency Type 2. In result of the disease, she is deaf, legally blind, has lost the majority of her mobility which leaves her dependent on a wheelchair and a breathing ventilator.
Paige’s older twin brothers, David and Tyson, were also affected by RTD. After 27 years of searching for an answer, Paige and her family were thrilled to finally find a diagnosis.Unfortunately, David passed away when he was 15.
Her mission is to spread awareness about RTD and encourage others by way of art, writing, speaking, and social media. Her love and faith for Jesus Christ is her sole motivator as she perseveres through this challenging life. Much of the proceeds from The Paige Project fund the RTD research foundation, Cure RTD. Visit Cure RTD here!!
If you would like to know more about Paige and her family visit the Joni and Friends website and watch the story Joni Eareckson Tada did for her TV show. The episode is called The Snedeker Family – No Unhappy Endings.
Paige is available to share her testimony and conduct meet-and-greets. To contact her, click here.